Genomics and Medicine | NHGRI

It has often been estimated that it takes, on average, 17 years to translate a novel research finding into routine clinical practice. This time lag is due to a combination of factors, including the need to validate research findings, the fact that clinical trials are complex and take time to conduct and then analyze, and because disseminating information and educating healthcare workers about a new advance is not an overnight process.

Once sufficient evidence has been generated to demonstrate a benefit to patients, or “clinical utility,” professional societies and clinical standards groups will use that evidence to determine whether to incorporate the new test into clinical practice guidelines. This determination will also factor in any potential ethical and legal issues, as well economic factors such as cost-benefit ratios.

The NHGRI Genomic Medicine Working Group (GMWG) has been gathering expert stakeholders in a series of genomic medicine meetings to discuss issues surrounding the adoption of genomic medicine. Particularly, the GMWG draws expertise from researchers at the cutting edge of this new medical toolset, with the aim of better informing future translational research at NHGRI. Additionally the working group provides guidance to the National Advisory Council on Human Genome Research (NACHGR) and NHGRI in other areas of genomic medicine implementation, such as outlining infrastructural needs for adoption of genomic medicine, identifying related efforts for future collaborations, and reviewing progress overall in genomic medicine implementation.

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My Family Health Portrait|Public Health Genomics Knowledge Base

My Family Health Portrait|Public Health Genomics Knowledge Base
My Family Health Portrait - A tool from the Surgeon General

Using My Family Health Portrait you can:

  • Enter your family health history.
  • Learn about your risk for conditions that can run in
    families.
  • Print your family health history to share with family or
    your health care provider
  • Save your family health history so you can update it
    over time.

Talking with your health care provider about your
family health history can help you stay healthy!

Learn more about
My Family Health Portrait

Disclaimer: The Surgeon General’s My Family Health Portrait tool does NOT allow the
government or other entities to access your information. The tool provides the software for organizing your
information, but your information is not transmitted back to government or other servers and can only be
downloaded by you. Your information is never available to anyone else, unless you choose to share it. The
Surgeon General’s tool does not provide medical advice. For questions related to family health history and
your
health, talk to your doctor.

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My Family Health Portrait - A tool from the Surgeon General
October 2020
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